Hepatitis C Do Not Be Affraid

Do not let Hepatitis C get you down! You need to get a good support system around you! You need your family and friends. You need to also reach out to a local suport group and if there isn't one in your area start one. That is what I did 6 years ago and we started with just two people but once the word got out we grew like crazy.

Friday, April 20, 2012

hepFest and update story!

Hello Everyone,
     I am so sorry that I do not get to update this on a regular basis!!! But I am trying!! I promise!!! If it is not one more diagnoses I had my 2nd stroke in 4 years on February 24. I am bouncing back as best I can. I still only have 60% of my body back but I am fighting. Just like I fight Hepatitis C everyday! I passed my 10 mark that my first Liver doctor gave me last week and I have fought to beat that mark. I know darn good and well I refuse to let a Stroke get me down!!! I am really trying so hard! So all the prayers you can send this way would be nice. I am also getting things done for the HepFest this year. I am having to hire a helper. I just can't do this. Just 6 weeks post Stroke. If anyone is interested????? Please call me or email me. I have home physical therapy and a home nurse. They are getting me a power chair so that I can take walks with the girls. Walk to my mail box, cook with my kids at their level. Instead of feeling like I am sitting on the floor. It will bring some good back to my life. Thank goodness. I have to stay strong for these girls I have to raise that are still at home, and my children who are grown men and one of them is blessing me to be a grandma, and the other is follow a dream that he may feel, in his heart is the right way to go!!! I pray for both of them every night, and all you people reading this. And to those Heppers who may be a family member or a friend reading this. I pray and ask that you share this with a family member or friend. Who is going through the life of Hepatitis C. It put's you in shock at first then you go through the stage of " WHY ME" Then it is WHAT IS IT? And from then on you just suck it up, put your big boy or big girl pants on!!! Know Hepatitis C does not and I mean does not!!! Make who you are!!!! The person your spirit and heart is: is who make's you as a person. Not some stupid disease. I am really trying to be the best person I can be. So hopefully one day my illness with slow down and allow me to get out of my room let alone my house. I need those of you out there reading this to please pray that I get the right amount of help for this years HepFest so it will not kill me. But it must go on!!!!!!!!!
I will keep you updated. I love you all bunches!!!!!!!!!!!  The event is

Indiana's 5th Annual HepFest Festival
June 23, 2012
from 10am til 3pm
Rieke Park
1850 N. Indiana Ave
Auburn, Indiana 46706

Christie Soaper
if you can't reach me by phone

Sunday, March 18, 2012

HepFest time is coming soon!!!! Whooo Hooooo!

Okay Well we are off and running for this years event. INDIANA'S 5th ANNUAL HEPFEST.    Yeaaaa hawwww!!! Doctor says no stress so any volunteers? I am hiring some help? So call or shoot me an email to let me know if there is any takers.  E-mail is ladytruckr@mchsi.com . Or you can call at 260-927-8180.

We have the location and the free blood test vouchers for three locations and a two week grace period too, and we have the time set. Anddddddddddddd the rest I am working on. The live music is going to be there and the State Senator Dennis Kruse and a couple other Government officials I pray. Also some health speakers. There will be food, fun, learning, awesome new friends to meet who understand how you feel inside, a great park with clowns for kids to play with and get their faces pained. Or not the clowns for the kids who have the clown thing. But anyways it is going to be an awesome day to stop in and become aware or more aware about what the word Hepatitis C. There will be a Free Hepatitis C blood Test Voucher at the event. You don't have to stay but you and tell your friends and church families about the free blood test. it will start on June 23rd and the vouchers are good til July 7th.  there is 3 locations on there for them to go to. No registration, just take the vouchers straight to the Lab and they will test you. And the state health department will test the blood. And hopefully you don't get the bad call. But there is so many many of you out there that are at risk. One little drop of Hepatitis C blood can live for 30 days with live virus on it. There is not suppose to be a Stigma on the disease. because it's a disease all crowds and classes, high income families to low income families. Hepatitis C knows no bounders to whom may have it or ever came in close contact with someones blood, Vietnam Vets should all be tested. If you work in the Medical Field and have EVER had a needle poke, if you have gotten a Tattoo or Body Peircing in an un safe shop. Or if you ever have gotten any form of blood product, such as Organ transplant, or Kidney dialosos or Gotten a blood transfusion. That is how I got mine and little Logan Leigh got her's because they tried to pull all 11lbs and 5ozs (o:  . and they cut her behind the ear and she then was emergancy C-Setion. so came blood to blood with mine. Okay back to others who need tested. If your an Officer of the law and have grabed someones licesnse with out a glove on and that be a Drug user using his drugs who knows how. They need to be tested. You baby boomers wipe your pride off your shoulders and if you were a lets say partier then you will want to get tested. I mean the event is based on Community Awareness. We want the word Hepatitis C to be in everyone ears and everyone that just has that "well maybe " thought in their mind, please come get a voucher and leave as many as you need, they are free, and last for two weeks, or come and stay the day from 10 am til 3 pm it should be awesome. For all ages. Heck I am going to be 50 and I have it there is older then me too and then there is like my daughter age 13. Everyone is welcome even those folks who are just plain curious!!! There will be 2 out of th 5 Hepatitis C Quilts in the world showcased at the event for all to see, even make your own square designed the way you want. for frr it will be made or you make it and then this Lady Maria she sews them on there. And for you quilt lovers out there let me say to be honored to have 2 of the 5 in the world here in Auburn to see, is awesome. They are so so big and very heavy. One quilt would cover up 10+ people. A well worth drive out to see them!! And we are saying that it's 2 of th 5 in world not just the USA the whole world. What a blessing it will be for you to see. Also we are having the event at our community;s newest park Rieke Park, It has so much to offer, from food to live music, free blood testing, walking trail, playground, restrooms and Karaoke singing!!! So much more. A great day all around!!!!!!!! Please come out to see us. Feel free to call me anytime with questions 260-927-8180 Christie.
Okay again I need someone to get with me on the clerical work and online grant research too. It will be $10. an hour?
Oh yea, we are a offical 501c3 Non-Profit Organization so any donations would be tax deductable for you.
Everyone I must close for now. I just wanted to pop in for a few to catch ya all up. Please remeber to smile at everyone you SEE!! In hopes that they will PASS it on!!!
Have a wonderful day!!!!
Christie Soaper

Wow oh Wow it's been awhile!!!!

I am way behind on keeping up with the newest news my way. And checking up on you all! Sorry. Our family has got out of the biggest part of a bad thing that happen to our life's and now that was over in Feb. And there was no innocence found in him. He didn't even show up for trail. But God knows what happened and so does all my family and friends. But it's something we will be done with from now on. Thank you so very much for all of your Prayers and help!!!!!!!!!!! You rock. Tena and her young lady that was with you Thank you to them to for us.  My mom, my cousin, my little Logan. We fought the right fight and it's done. I am so very proud of my child for fighting to the end. She never got knocked down once. What a job she did. I am so very proud of her 210%. So God Lets Move On!

Well on a happier note. I want to hear from you all. I am home in bed sick most of the week. I do feed my girls and get 18 dinners at the soup kitchen for the Seniors where I live, I even go out in my Jammie's at time, no matter how weak I am the soup kitchens hep me carry it out to the truck and I can easily grab the dinners out one at a time. And they live on my same block. So I don't mind and the soup kitchen understands my weakness and being sick so they are very understanding and help me out. So God Bless them. And God Bless the hot dinners we have twice a week. The least i can do with all the Angels that live where I do. Since the day I turned sick and then Chemo twice 14 months and then Logan's Chemo was for 12 months two different years. Because a year after the first year of treatment the virus was active again. But the Seniors back here would bring dinner after dinner, home cooked meals at that to us when we couldn't cook or get out. My oldest daughter is almost a full grown lady. Wow. She was so awesome through 7 years of treatment her Mother and Sister were on. She was Nursemaid, Mother to Logan when I was sick, she keep up on the house real good, she cooked, she held our hair if we needed her to when we were getting sick. She was so many things and damnit. She never really got to be a kid and I promise to you all I will show her that joy in other ways the best I can. She is almost College age and I am praying so very hard she doesn't move out when she's 18. That will just crush me. And then 5 years from now the Baby, my baby will be 18. That is scary. I am so very affraid of the term EMPTY NEST SYNDROM. Because i already get some of that like the second part of a school day. The first part of a school day is aweeeeee. So quite. And if they spend the night somewhere I start missing them like crazy. God hold my hand please for the new days to come . Yes My oldest daughter is my spunk that kick's me in the butt sometimes. I am so very proud. I have 5 children to fight for. I have just 3 weeks ago had a TIA ( mini stroke) Now mind you on top of the Hep C side affects, and several other things that my body is trying to shut down. I get hit with a second stroke. One on each side of the brain. Now I am in training to teach parts of my bady to work. Like a baby learning it. But I will blast out of this. I again say I refuse to let the Devil win. Everything and I mean Everything happens for a reason!!!! You all have to tell yourself that everyday. God knows what he is doing!!! It's his will. And it has been before I was born almost 50 years ago. So when I say "EVERYTHING HAPPENS FOR A REASON", I know what I am talking about. No matter how good or bad it is For A Reason. And my goal is to find a cure for Hepatitis C so I got a long way to go. But not for me but for my baby and my new family in the hep world I will fight to find a cure. Hepatitis C is a bad word and should never run ramped like it is in The United States of America, not talking about other countries. But in America the CDC and the Amercian Liver Foundtation say that for every 1 case of AIDS being repoted there is 5 cases of Hepatitis C. It is really runnig crazy is every kind of crownd. It has no prefrence what life style you live it is there. 1 in every 10 people knows someone who knows of a person suffering from this, Debilitaing at times, from this disease. But Christian or not just once raise your hand to the skky and say please God please for all of us. Thank you so very much!
I will stop this post and start the HepFest one!
I love you all bunches!!

Monday, January 2, 2012

WELL WE MADE IT!!!!!!!!!!!

Well my friend and family we have made it through another year!!!  We are awesome for that. It's another year God blessed to have. Wow I praise him for that!!!! I hope you all are doing well and the bringing the new year wasn't stressful on you and that goes for Christmas too. That is why Christmas and the getting ready to close the year I haven't got an update of here!!!! My Christmas was great I got to spend it with my children and my dad. What more can you ask for? good blessed me to make it nice for my children and family and friends. So that makes me happy. I got a wonderful heart necklace that my daughters got me that says MOM in the middle. As for my two children still left at home they got a Telescope as their big present and I think I sam just as excited for it to turn warm around here so we can all play with it. How awesome it will be! (o: I managed to cook a nice dinner for the family and it turned out good. I made my 4H blue ribbon pie, well close, I didn't have Granny Smith apples. But mmmmm was it still good. Sat a watched a movie with my kids and my dad and that was fun too. We never get to see him much, mainly birthday's and x-mas. I will make more time to cook him a great dinner at least once a month. Have to if not 2 a month. We miss him bunches. He is one of the greatest people on this earth!!!! What a heart he has and true love for us!!!  I didn't get all my Christmas cards sent out this year I had 178 people to send them to and that was down sizing the prize of a stamp, but i did manage to get most of them done. I still have a couple who don't have there's yet. They will though just a couple days late. I am never one to ever not have them in the mail by December 1st. Same on me. But between being sick and doing the things I do for my family and friends I just got behind alittle. Next yer I need to hire a Secretary. LOL (o: We'll have to see. I do have alot of friends and my girls and neighbors who end up become my friend they are here for me on those sick days to do all they can. So I a very blessed there. I know some of them have their own life to tend to and that is totally understood. But thins will be good this year. I have faith, gotta have faith. 

I am blessed to have one more day to help you. My goal this year is to be everything my family needs, each and everyone. I have big one they are all over America but their love is here 24/7!!! I want to make my support group everything it can be. Bringing all the speakers to group that we need to be there for us!!1 Open the hearts of these speakers so the will provide us of there time freely. We need that. Also open the hearts of the people I reach out to to get this years HepFest of and running way before the start date in June.. We all need a day of fun for us and our family and friends. To be us and not be judged by one single person in it. A place where our children either with or without Hepatitis C to understand where the other kids feeling come from. And for our friends to come and support us in our day of total freedom to just be us!!! I have been having some problems on getting donations and grant money together so we can have our day. So please pray for that. I pretty much got the live music lined up, the free food, the KidZone is started, however any of you with idea's you think would be fun for our children please email me or call me. I know we have some game idea's plus there is a playground where I think we are going to have this years event. So lets see if all our prayers can produce a wonderful HepFest festival!!! I have faith in it and in all those who are going to be a part of it. We will get there. I am thinking this years event will be the second Saturday in June. The first Saturday of the month, like the past years, it is sometimes running into Graduation time. So I really hope the second Saturday will work for you all. Please I really need to get donation's and grant money. I have our grou as a Non-Profit Orginization 501c3 so everthing everyone will give will be tax dedutable. So pray, pray and pray some more. My pharmicutical company's I deal with who make the medicine for the treatment are making it so hard to get their help. And we by their producted on a monthly bases!!! Expensive product I must add. So God open their heart to see this event for the whole state of Indiana. I know it is call Indiana's Annual Hepfest but that does not in anyway mean everyone from southern Michigan and Norteast Ohio are not welcome at all!!! Everyone is welcome 210% so come on out and help us make it a blast. Thank you!  We need to get $2000.00 raised to have a productive festival this ear. That pays for our tents, tables, stage, live electric to the stage. It also helps us provide the jumper for the KidZone, food supplies and speakers. It all adds up quick. But I have it doen to the bare minumin. So hopefully this year Roche will not back out on us a the last minute and leave or group reponsiable for what already set up on site. We'll see. Prayers people and those of you out there with Hepatitis C who don't really pray then keep your fingers crossed. We need it.

Well as for our little Logan her Hepatitis (HCV RNA) blood test came back and she is now two yeaar Un- Detectable (remission for those not knowing what that means) and man oh man were we happy. I have been at a Non- detectable rate now for 6 years, Whoooo Hooooo. However I have damage to my Liver and muliple other things physically wrong with me. So that really the  having all these other wrong makes it at times hard to be a mommy and daddy to my girls left at home, However we manage. Little Logan is in stage 1 of her Liver with mild Inflammtion. So she should be good til I find that forsure cure for her so her Liver damage stays the same. I know it will God has his hnds touching it daily. And that goes for each and everyone of you! God is touching you disease with healing hands. In form or another.No matter what stage you are in or how sick you may feel. Itis what it is and you always need your faith. We all know healthy people die everyday so we need to know ONLY when it our time to go to heaven then that is the time the good lord has gave us, and not a second to soon!!! You have be allowed to have Hepatitis C becaise the next person in line would not have been able to handle it like we do. So being positive is not about you having the disease but t know it is for a reason in your life. Now I am not say this in a mean or crazy way. Just in a real way! I am also going to everyother week or at least once a month do my stories on the Stigma word put on Hepatitis C. I would love it if I could take an eraser and earse totlly the word stigmsa or cooty factor. Those are such a horriable title for for anyone to every have. You are not who you are for what you have. You are you a reall person. God has blessed us to have you her among us. You Are All Awesome in your own ways!!! Well I am going to do alot more reasurance the public that we want to be treated equally. They want everyone to treat them like that, with respect until they don't eserve it. Not by them excepting us will be a wonderful world to live in.

Well I am going to close for now. Please know I pray and thank about you all everyday!!! BE HAPPY MAKE THIS A WONDERFUL LIFE OF PEACE FOR YOURSELFS!!!!!

I love you all,
ladytruckr@mchsi.com put int he subject line Hep C blogsite. So I know where you are coming from. Thank you!!! annd my phone number is 260=927-8180.
BIG HUGS to you all!