Hepatitis C Do Not Be Affraid

Do not let Hepatitis C get you down! You need to get a good support system around you! You need your family and friends. You need to also reach out to a local suport group and if there isn't one in your area start one. That is what I did 6 years ago and we started with just two people but once the word got out we grew like crazy.

Sunday, September 25, 2011

Getting ready for the fair 2011

Well here i sit just one more day before the DeKalb County Fair. I am really hoping and praying that most of the people who walk by my booth at the fair will stop by and get educated about Hepatitis C and get a free voucher for a free blood test for Hepatitis C. The first time I did the fair (which is the only time so far) I took home 98% of the informational phamplets that I took there. That was very saddening to me. People would just walk by and turn the other way putting that cootie factor on my booth and all it has to offer. I really am so sick of people acting like that. Everyone should take the time to stop by get inforamiton ask questions and or get a free blood test for the Hepatitis C. Right now in America according to the CDC and the American Liver foundation. Every 1 case of AIDS being reported there is 7 cases of Hepatitis C being reported. Scary. The disease is spreading like crazy. Yet people still put such a stigma on it that they won't reach out and get information about it and get tested if they are at risk. And people are never going to stop using others needles when they are junkies. And those who have been in the Armed forces will not take the time to be tested either. Then there is those who are getting unsafe tattoo's and body piercings at an clean shops and in homes at party and such. People who work in the medical field who have come in contact with anyone's blood should be tested. But 75% of them won't for fear of what people will think of them if they do. Why does what you have be more important then who you are. No matter what kind of spreadable disease you have you should never be labeled as having cooties so to speak. Never!!! Those of us who have a spreadable disease are just as human and have feeling just like someone who doesn't. So I sit here and pray that this week at the fair people will stop by and take the information I will have out and ask questions and get tested if they are at risk. I ask all of you who are reading this to please pray for me to be able to attract people to want to stop and get informed. Thank you! Speaking from someone who lives with having Hepatitis C it is a very lonley place to be in. Very lonley!!!. The depression of knowing when I first meet someone I have to more less say "HELLO MY NAME IS CHRISTIE SOAPER AND I HAVE HEPATITIS C" not exactly like that but really close. And to be fearful of that oerson you meet trun and run from you never to speak again. It hurts badly!!! And then to have a daughter whois also Hepatitis C positive and having to do that with all her friends parents before she can go and spend anytime at their home or ours. And having to tell her teachers and the faculity at school before each new year of school. It is not my fault that I contracted Hepatitis C and it is not my daughters fault or mine that she has Hepatitis C. We contracted me from recieving contaminated blood and her from being cut during delivery. I hate this so bad for my daughter more then me. I want her to grow up living a normal life. With no one putting the cootie factor on what she has and have them to turn and run away!!! I have put a story in the paper about people stopping at my booth. So we will see. I will keep you infromed. Okay I will close for now. please rememebr to keep the fair in your prayers. Praying for opened minded people to get educated and get tested. Thanks again.
Love ya all,

Tuesday, September 6, 2011

Wow! What a day. What a day. What a day.

Well things are good for me besides dealing with my yuckyness. When it come to Logan my youngest daughter who also has Hepatitis C. She contracted it during a c-section. It is school time and I must say so far I feel relieved. Not just dealing with Hepatitis C myself I have to live her Hepatitis C too. Like when i meet someone I say hello my name is Christie I have Hepatitis C . Like that in different way. But that is point blank I have it tell it is always what I say. I hate the stigma on it so very very very bad. Now Logan going through grade school was good. She had one teacher and she followed alot of the same teachers her sister had. So they were already aware of the Hepatitis C. But every year I still made it a point to refresh the school and her teacher all about the Hep thing. At first her school made me mad at the beginning of us finding out Logan was also positive with her Hep. I called the school and said' I am calling to report about the Hep c and they were am you need to talk to the nurse first before she can come. I was so mad. But then the stigma fear wore off and they opened there hearts 210%. So we are really going to miss them. The kids, the teachers and all employes and other parents too. They all loved Logan. And we all became like family. They went threw me being sick with mine to Logan having it and so much more. Anyways back to now. It's a new school. Middle school. So now there is alot more teachers, employes, kids ext. It's kinda like the feeling of having to tell each one of her friends parests first before she could spend the night. Telling people who know nothing about it is something we have to do. It is really starting to take a toll on Logan.She is asking and crying with the qyestion. Mommy why me. wow What a punch in the gut to me I just try to tell her to get her mind on something else. And I reasure her that we are not going to let this Hepatitis get the best of us. And remind her that healthy people die everyday too. And we will nnot go until God is ready for us. I mean Gosh what do you say? Hard to put yourself in my shoes. The feeling of guilt that I gave my daughter a disease that can Kill her. Evening though that it was because of the c-section and the cut behing her ear. I still go at night before I go to sleep at night lay there hurting because my baby is hurting. Every way she can. And has to live in this cruel world  living it. So today has been a really hard day of thinking about it and not knowing how to come out of this depression I feel because of it. Knowing I have started a support group because Gosh I need it at times. I want everyone in my group to know I thank each and everyone of them..This is something I have keep inthe not knowing what to say or do to comfort my daughter.  Blaaaaaah. Please pray for me!!! Hopefully I can help find a peace for her. Finding a cure for her is why I do all the work for bringing Hepatitis C awareness stuff...... Everyone have a great day!!!