I am still blogging on her and thinking of a way to continue to bring the awareness of Hepatitis C to our community. Our Open Open House was good but there so many more calls then people who showed up. I feel so bad for those who didn't show because of the awful stigma there is yet on this disease. It makes me sad. I want everyone to feel the joy we do when we all get together and enjoy the company of someone who can understand what you are going through. It makes it so nice to be able to talk to someone and have them say " I know " and have them really know what you are feeling. We can all get so down once we are diagnosed with Hepatitis C and feel that that scary feeling of the unknown. I want the public to realize that it is who you are that makes you and not what you have. So like I said we got to meet a few new people and for that I am grateful!!! They all seemed quit lovely. I am not going to give up on bringing the stigma down. I am not sure how or exactly how to do this. But I will never stop trying. One thing I will continue to do is to pray. And prayer can be quit powerful so if any of you would please pray also. Thank you.
I am scheduled for my 3rd Liver biopsy in July to see how much the Cirrhosis has progressed. Hopefully it has not but we will see.Okay til next time take care and stay strong!!!
Have a great day!!!
Christie
Wednesday, June 8, 2011
Sunday, May 1, 2011
Well the Open Open house went really well.
Well the event was really great! We met three new people with Hepatitis C and that made it all worth it !!!! I really wish more of the public would have came out and taken advantage of learning more information about Hepatitis C. There is still such stigma on this disease that scares the public because of the unknown. And the only way they are ever going to learn is to get information on the disease. It really saddens my heart that people just want to stay in this bubble of there lives and not try to learn new things about this disease that is killing people everyday. Why I do not know. But I will never stop with my calling of educating the public and try my best to find a cure for my daughter and others!!!!!!!!!!!! Hepatitis C is not a cootie factor and I am sick of people thinking that because they are to scared to learn the real stuff about Hepatitis. I will continue to reach out and share what I know and hopefully the public will loosen up!!!!!!!!!!!! I want everyone out there to know these facts. 1. For every one case of AIDS being reported to the CDC ( CENTER for DISEASE CONTROL ) there is four cases of Hepatitis C being reported. In America! And in every ten people you know someone will know someone with Hepatitis C!!! They predict that by the year 2014 or 2015 here in America AIDS will be in the back ground and Hepatitis C will be in the front. So the public really needs to come out of their bubble and be open to learn about this disease and even get tested for that matter. Okay I will close for now and I pray that everyone that reads this post will pass this on to as many friends they can to help the public here in America be safe and well aware and have learned about the disease. Thank you everyone for your time in reading this!!! It really means alot to me. Love, peace and knowledge to you all!!! Everyone have a wonderful day!!! You deserve it!!!!
Saturday, April 9, 2011
Open Open House
Well I am getting ready for our Open Open House that is this next Friday, April 15th from 6pm to 8pm. It will be held in the Dekalb Medical Arts Building next to Dekalb Memorial Hospital at 1316 E. 7th Street in Auburn, Indiana 46706 in conference room 303. We are going to have lots of informational packets, refreshments, a KidZone for the children to play at while there parents are learning all they can about Hepatitis C. We really hope that the public will be open to this night and come out and get informed. I really pray that the stigma can be erased on this disease so that everyone will not want to hide anymore and know it is okay and that just because you have Hepatitis C doesn't mean you are a bad person. Those of you living with Hepatitis C are just as normal as those who do not have it. I have so many of you in group but there is so many of you who will not come out to group or any of the functions that we have because you are afraid. Well stop being afraid and reach out to those of us who know exactly what you are going through.
On a different note I had a cat scan on my liver yesterday and will soon be having my 3rd liver biopsy. I pray that I still am at stage 3 and not at stage 4. I will stay positive no matter where I am at. As I need to be strong and live a long time I am mom and dad to my children and God still has a plan for me in bringing awareness to the public about Hepatitis C. And I pray that I can find a cure for my 12 year old daughter who is positive also.
Well I will close for now I hope you all have a very good day and know that I am praying for each of you.
On a different note I had a cat scan on my liver yesterday and will soon be having my 3rd liver biopsy. I pray that I still am at stage 3 and not at stage 4. I will stay positive no matter where I am at. As I need to be strong and live a long time I am mom and dad to my children and God still has a plan for me in bringing awareness to the public about Hepatitis C. And I pray that I can find a cure for my 12 year old daughter who is positive also.
Well I will close for now I hope you all have a very good day and know that I am praying for each of you.
Tuesday, March 29, 2011
Goodmorning all!
I hope everyone has woke up with a positive feeling in their hearts knowing that we will beat Hepatitis C. If we all believe it it can happen. I know and feel in my heart that I will do all I can do to find a cure for Hepatitis C so I can cure my daughter. She is only 12 and has now been through treatment twice. She is now one year out and is non-detected. Thank God!!! She has really had it tough going through the treatment twice. She still shows some days that she feels some of the problems that can affect some of us daily and or just once in a while. I really got more and more determined to find a cure for her. Having to give her a shot weekly for a year. Wow that was tough. After going through treatment twice myself made it even harder. Knowing how bad it made me feel. It took all I had to give her those shots. And then the pills all week long. She did really well I must say. She did way better then I did and then some in my group. She would get her shots on Friday night and on most Monday's she was ready to go to school. I think her love for school alone helped her a great deal. And I think school helped her keep her busy and her mind off the treatment. What made me think of this this morning I don't know. I guess it was finding out that she was non-detected for a little over a year now. And the dream I had last night knowing there is a cure out there real soon for this. i just feel it. I will never give up trying to find this cure. I may not be that smart when it comes to chemical stuff. But I am one determined momma!!!!!!!! Anyway I am off today to get donations for our Open Open House we are have in April. So wish me luck. Everyone have a wonderful day!
Much Love, Christie
Much Love, Christie
Me and one of the Hepatitis C quilts
One of the 4 Hepatitis C quilts here in America. With seperate squares of different stories form Hepatitis C people.
Me on Friends bike
Just thought I would throw this in. Me on friends bike both of us have Hepatitis C.
Tuesday, March 22, 2011
Well it's the second day of spring.
Well for being the second day of spring it sure is cold. It was partly sunny yesterday for the first day of spring and in the 50s. So I took the girls to the lake for a picnic. The lake was really choppy and cold wind coming in off it. But the picnic was worth it. we went yesterday because it's the girls spring break and it was the warmest day of the whole week. It is suppose to be in the 30s by the end of the week with a chance of snow. How crazy. I am ready for the warmth to get here so I can pull the camper down here in front of my house and get it ready for May the first really warm and sunny weekend in May we are going to take the camper out. Whooo Hoooo. Can't wait. I get my new GMC Jimmy to so I have something to pull it. Instead of having my friends pull it to the camp ground for me.
I really woke up late with my liver being really sore. Does any of you have that trouble? What do you try to do for it. I can only sit leaning to my left tying to give the Liver as much room as possible. For those women out there having Liver pain to me it feels like I am 9 months pregnant and the baby is in my ribs. That is the only way I can explain it. I haven't been told by a doctor how I can help the pain go away. I think we mostly get it when the Liver turns Fatty and gets Cirrhosis. Never had it til I got that fare along. Well I haded some more pictures of my family and one years HepFest and Blessing of the bikes. I hope you like them. In a couple of them I look alittle blown up well for two years my new medicine did that to me. Now I am loosing the weight and I guess my body just is getting use to it. It is Lyrica that they put me on for my Fibromyalgia. With the Hepatitis C aches I have and then to have the Fibromyalgia on top of it my days can seem rather long. But I stay strong and positive because I do not want my girls to see me in pain. I do not want them to have to know more then they already do about my liver stage and the Cirrhosis. That is enough for there little minds to know and sometimes I wish their ears weren't so big and they didn't know what they know now. Oh well I tell them that God only takes people sick or not when it is their time and not a second before. Having kids living in the same house with you and seeing you day by day. Sick on most and trying to hide it from them is not at all easy or really possible. As they are 12 1/2 and 15 1/2 so they now are smart enough to hide things from them. They are strong young ladies though I have to say that for them. And them my 15 year old has to live with a mother and sister both with Hepatitis C. Now that is one bad hand dealt to her. She is tuff on the outside. But she has told me that she wonders if when she goes to sleep will we be alive when she wakes up. Boy does that not ripe your heart out. I just keep telling her the in Gods timing. That she need not to ever worry about that. But then when you think about it what is the right thing to say??? Any ideas??? okay I am going to go for today. I hope you all have a wonderful day. You deserve it. Everyday and every minute. Always remember that.
I really woke up late with my liver being really sore. Does any of you have that trouble? What do you try to do for it. I can only sit leaning to my left tying to give the Liver as much room as possible. For those women out there having Liver pain to me it feels like I am 9 months pregnant and the baby is in my ribs. That is the only way I can explain it. I haven't been told by a doctor how I can help the pain go away. I think we mostly get it when the Liver turns Fatty and gets Cirrhosis. Never had it til I got that fare along. Well I haded some more pictures of my family and one years HepFest and Blessing of the bikes. I hope you like them. In a couple of them I look alittle blown up well for two years my new medicine did that to me. Now I am loosing the weight and I guess my body just is getting use to it. It is Lyrica that they put me on for my Fibromyalgia. With the Hepatitis C aches I have and then to have the Fibromyalgia on top of it my days can seem rather long. But I stay strong and positive because I do not want my girls to see me in pain. I do not want them to have to know more then they already do about my liver stage and the Cirrhosis. That is enough for there little minds to know and sometimes I wish their ears weren't so big and they didn't know what they know now. Oh well I tell them that God only takes people sick or not when it is their time and not a second before. Having kids living in the same house with you and seeing you day by day. Sick on most and trying to hide it from them is not at all easy or really possible. As they are 12 1/2 and 15 1/2 so they now are smart enough to hide things from them. They are strong young ladies though I have to say that for them. And them my 15 year old has to live with a mother and sister both with Hepatitis C. Now that is one bad hand dealt to her. She is tuff on the outside. But she has told me that she wonders if when she goes to sleep will we be alive when she wakes up. Boy does that not ripe your heart out. I just keep telling her the in Gods timing. That she need not to ever worry about that. But then when you think about it what is the right thing to say??? Any ideas??? okay I am going to go for today. I hope you all have a wonderful day. You deserve it. Everyday and every minute. Always remember that.
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